Palliative vs. Hospice Care

Palliative Hospice Infographic

In this article, I’m going to talk about palliative vs. hospice care and how to know the difference.  Unfortunately, there may come a time pre-transplant where you may hear one or both of these terms.  I’ll help you understand the difference between the two and how one of them does not mean the end of […]

The Right Primary Doctor

Doctor Reading Chart

Choosing the right primary doctor during your transplant journey is a big deal.  Contrary to what you might think, much of your day-to-day care will be handled by your primary physician (PCP).  This doctor must be able to work in tandem with your specialist and especially with your transplant team.   Your PCP will be managing […]

Sharing Your Transplant News

Sharing News Teen

Sharing your transplant news with family and friends is no easy task.  You may need to approach everyone differently, and each person will handle it in their own way.  When you have kids, this can be even more challenging.  In this article, I’ll share some strategies on how to approach these conversations and some things […]

Living While You Wait

Sunrise

Living while you wait for a transplant.  Well, that’s the idea, right?  To keep yourself physically alive so that you can get your transplant?  Of course it is, but it’s more than that, friends.  What I’m talking about is really living.  You know, enjoying your life and the moments in it even while facing your […]

Avoid Illness and Infection Before Transplant

Hand Washing

To avoid illness and infection before my transplant, I made some lifestyle changes. A lot has happened since then and what was different then is normal now. Society now practices many of the same habits thanks largely to the SARS-CoV-2 (Coronavirus/COVID-19) Pandemic. Why Is It So Much More Important Now? When diagnosed with a condition […]

Information Within Reach

Information Within Reach

Having the right information within reach shows your preparedness and ability to keep track of your health. It also makes your journey a little more smooth. So Many Questions In my visits to the ER and admissions to the hospital, staff often had many questions for me.  Many times, staff would ask the same questions […]

The Go-Bag

Go bag image

The go-bag is essential so you have everything you need for the hospital.  Having one ready will make an extended trip to the hospital a little more comfortable. If you haven’t figured it out already, I am a planner.  If you were to look at my desk right now, you would see lots of lists.  […]

The Transplant Evaluation Process

Eval Process Checklist

The transplant evaluation process can be daunting.  In this post, you’ll get some ideas of what to expect and how to get through it all. Everyone’s Process Will Be Different I spent more than half my time in the hospital while waiting for my transplant.  What that means is that the bulk of my evaluation […]

You Need a Transplant – How to Cope With the News

Coping Difficult Roads

    Let’s talk about how to cope with the news that you need a transplant.  This is not easy news to hear, so I have compiled some tips and resources to help you through it. I will never forget the morning I sat in my hospital bed and spoke with my doctor about how […]